Endometriosis: The Silent Symptoms

Blog Events Health News 14th September 2026 Enquiries & appointments
woman holding her abdomen with endometriosis pain

Endometriosis can present with a variety of lesser-known symptoms that are often overlooked or mistaken for other conditions, making an accurate diagnosis more challenging.

For many women, fertility challenges can be one of the first indicators of endometriosis, even if other symptoms have been relatively mild or gone unrecognised. While the most known symptom of endometriosis is painful periods, the condition can affect multiple areas of the body, including:

  • Lower back and hip pain
  • Leg pain or sciatica-like symptoms
  • Chest pain during menstruation
  • Pain when passing urine or opening the bowels

You may also experience persistent tiredness that goes beyond normal day-to-day exhaustion, having a significant impact on your daily activities.

Symptoms can vary significantly from person to person and can fluctuate throughout the menstrual cycle.

What symptoms of endometriosis are typically overlooked?

Several symptoms of endometriosis are frequently dismissed as being a normal part of menstruation or are attributed to other health conditions. These symptoms should never be dismissed as ‘normal’:

  • Heavy menstrual bleeding: whilst heavy menstrual bleeding can be a normal occurrence, especially in the first days of menstruation, soaking through sanitary products quickly or passing large clots should not be normalised.
  • Painful intercourse: pain that can be felt deeply within the pelvis, during or after intimacy, should never be dismissed.
  • Fatigue: If tiredness is persistent and disproportionate to activity levels, and doesn’t improve with rest
  • Digestive concern: symptoms such as constipation, diarrhoea, bloating and abdominal pain are often attributed to other conditions, such as irritable bowel syndrome, rather than endometriosis.

How do I know when my symptoms warrant further investigation?

If you are experiencing any of the symptoms discussed, it is worth seeking medical advice so you can be assessed in full. Before your appointment, it can be helpful to consider:

  • The nature and severity of your pain
  • Where the pain is located and whether it radiates to other parts of your body
  • Any factors that make your symptoms better or worse
  • Your menstrual history and any associated symptoms
  • Any bladder or bowel symptoms
  • Whether you have concerns about your fertility
  • How your symptoms are affecting your general health, daily activities and overall quality of life

Providing this information can help your specialist build a complete picture of your symptoms and determine whether further investigation is appropriate.

Why does endometriosis so often take years to diagnose, and how can I advocate for myself?

There are several factors that may prolong a diagnostic journey for endometriosis, such as:

  • Assessment by non-specialist: Being assessed by a general gynaecologist, rather than a clinician with specialist expertise in endometriosis
  • Delays in referral pathways: A delay in referrals from a primary care provider, like a GP, within the NHS or private providers
  • Dismissal of symptoms: Feeling like symptoms have not been fully heard or are being dismissed, can discourage women from continuing to seek further investigation.

If your symptoms persist despite initial treatment or continue to have a significant impact on your daily life, it is important to keep seeking answers and advocate for yourself by:

  • Clearly explaining how your symptoms affect your daily life, work, and relationships
  • Asking questions about your symptoms, possible diagnosis, and treatment options.
  • Requesting a referral to an endometriosis specialist if your symptoms persist or you feel further assessment is needed.

Clear communication and persistence can help ensure you receive the appropriate assessment and access to the right treatment and support.

At what point should you push for answers?

Every woman deserves to be listened to. Your symptoms should be taken seriously, and your concerns should never be dismissed. The ultimate goal of any specialist is to identify the most appropriate treatment for your individual needs and, above all, improve your quality of life.

Endometriosis is a serious condition affecting 1 in 10 women (WHO, 2025). If your symptoms are persistent, worsening or having a significant impact on your quality of life, trust your instincts and seek further assessment.

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Article produced by

Mr Ahmed El Gohari, Consultant Obstetrician and Gynaecologist, Endometriosis Specialist
Ahmed El Gohari
Consultant Obstetrician and Gynaecologist, Endometriosis Specialist

KIMS Hospital

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